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"Keene has written a comprehensive handbook to serve
as a road map for others, from diagnosis through treatment."
Anne C. Tomlin, Library Journal,
"Nursing Your Children's Health Collection"
"Highly recommended. In this new edition, Keene provides
updates on treatment including bone marrow transplants, chemotherapy drugs,
and methods of dealing with side effects. A pull-out record keeper allows
patients to record treatment information for future caregivers. ...Poignant
and supportive."
Alan Rees on Consumer Health, A Majors Report
"Of all the many kinds of help we had (and we had
lots) the book was the single best gift we received. It was the gift of
knowledge, so we could ask intelligent questions about our daughter's
care. It was the gift of security, allowing us to foresee much of what
was coming, and giving us the tools we needed to cope. And it was the
gift of hope, for we could see that many children do, indeed, get through
this trying time, and come through the grueling treatment intact."
Kim Warren, parent
(one of dozens of thank-you letters sent to the author)
"This book is essential for any consumer health collection
and for parents of leukemics. Keene provides readers with the tools to
be effective advocates for children with leukemia by thoroughly explaining
the disease and the dynamics of health care settings. Overall, Childhood
Leukemia empowers the reader through practical advice and sound information."
Consumer and Patient Health Information Newsletter
Medical Library Association
"Nancy has clearly done a thorough job of gathering
data and charting the course for families and children facing the crisis
of leukemia. I particularly enjoyed the weaving of family accounts in
between the technical data which made it (1) easy to read and (2) much
more tangible for those individuals needing assistance in identifying
with the contents."
Wendy Hobbie, R.N., M.S.N., P.N.P.
Coordinator,
Follow-Up Clinic, Children's Hospital of Philadelphia
coauthor of "Survivors of Childhood Cancer: Assessment and Management"
"I know of no other book which ties technical and
practical information to opinions of those who have experienced the event.
The first person accounts add 'readability'. They encourage the reader
to read on and help explain the information given."
Cynthia Krumme, author of "Having Leukemia Isn't So Bad.
Of Course It Wouldn't Be My First Choice"
"This latest edition of Childhood Leukemia provides
the most current information about leukemia, its treatments and side effects."
Eleanor Pask RN, MScN, EdD,
Executive Director,
Candlelighter's Childhood Cancer Foundation ~ Canada
"This most complete parent guide available covers
not only detailed and precise medical information about leukemia and the
various treatment options from chemotherapy to bone marrow transplantation,
but also day-to-day practical advice.... We strive for the universally
'truly cured child,' described by Dr. Jan van Eys a pioneer in
childhood cancer treatment as one who is 'not just free of disease,
but developmentally on a par with peers and at ease with the experience
of having had cancer.' Parents who read this book will have the opportunity
to insure that, as much as possible, they can give their child the very
best opportunity to be 'truly cured.'"
From the Foreword by F. Leonard Johnson, M.D.
Chief,
Division of Pediatric Hematology/Oncology
Oregon Health Sciences University
"I am the great grandmother to a little four-year-old
girl who...has the type of leukemia known as ALL and is in the second
series of treatments.... She is a wonderful child, brave and stoical and
we are all amazed at her resilience. Your book has been so helpful to
the parents and they recommended it to all the rest of the family, so
I read it. I am 90 years old and had been a bookseller for 25 years....
Your book is so complete and so helpful in every way, that I couldn't
resist sending you my compliments for writing it. I hope life will be
very good to you for writing this complete and helpful book for other
parents. Bless you."
Alice H. Sobey
"I expect that in my journey through cancer with my
daughter Kathleen Rae and through the 25 years after her untimely demise,
I have read several how-to books a year on getting through the pediatric
cancer experience. Finally, a book that truly addresses what is needed,
practically and emotionally, to work the system for the benefit of the
family. No preaching! No proselytizing! No slant towards a personal experience!
No nagging feeling that the book has been written by doctors! Rather,
my conviction is that this book wrote itself from careful and honest listening
to parents, children, siblings, doctors and others traveling the road
that is the experience of cancer in a child. The reader is provided with
practical tips on getting through the experience including forging
working partnerships with the medical care team, evaluating and restructuring
the family partnership, effective networking in daily problem solving
and finding supportive allies as needed."
Grace Ann Monaco, J.D.
A founder of The Candlelighters Childhood Cancer Foundation
"This wonderful book is an informative addition to
the House library, and one we will recommend wholeheartedly. By providing
this resource to the children and families staying here, you enable them
to find a bit of hope and peace of mind in a time of great difficulty
and confusion. This is a wonderful assistance to us in our continuing
efforts to provide an important service to families in need."
Peggy Enright, House Director, Boston Ronald McDonald House
"Childhood Leukemia is the very best book on the subject
that I have read, and I've read everything I could put my hands on. It
is absolutely correct in the subject matter it covers and the approach.
I wish someone had put a copy in my hands the day after the diagnosis.
It literally will be a life-saving book."
Rebecca Laird, Parent
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