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About Us

Who We Are

Our Mission

Childhood Cancer Guides is a 501(c)(3) charitable organization whose mission is to make the future brighter for children with cancer, from diagnosis through survivorship, by publishing books that provide:

  • Clear explanations of the various types of childhood cancer
  • Descriptions of state-of-the-art treatments for childhood cancers
  • Emotional support for every member of the family
  • Access to helpful resources

Our Board of Directors

Patty Feist, MS
Parent of a long-term survivor of childhood cancer; webmaster of www.ped-onc.org; administrator of online support groups (www.acor.org)

Wendy Hobbie, RN, MSN, CRNP, FAAN
Associate Director of the Cancer Survivorship Program at Children’s Hospital of Philadelphia; writer; advocate

Nancy Keene
Parent of a long-term survivor of childhood cancer; writer; advocate

Gib Smith, JD
Long-term survivor of childhood cancer; attorney; advocate

Catherine Woodman, MD
Parent of a long-term survivor of childhood cancer; psychiatrist; advocate

A Little History

Childhood Cancer Guides was founded in 2003 by two parents of children who survived childhood cancer—Nancy Keene and Catherine Woodman, MD. Nancy’s daughter had high-risk acute lymphoblastic leukemia and Catherine’s son had medulloblastoma, a type of brain cancer. Our books are full of stories from hundreds of parents, children with cancer, and survivors of childhood cancer. And they are reviewed by well-known experts in childhood cancer from institutions such as the Children’s Hospital of Philadelphia, Sick Kids in Toronto, Children’s Hospital of Los Angeles, St. Jude Children’s Research Hospital, and dozens of others. More than 100 hospitals and support groups distribute our books to families of newly diagnosed children and teens.

Acclamation

Guidestar Exchange - Bronze ParticipantGuidestar
We hold a bronze level award with Guidestar.
Guidestar is internationally recognized for its non-profit reporting services.
» Click here to visit our Guidestar page

cac2-logoCoalition Against Childhood Cancer
CCG is a proud founding member of the
Coalition Against Childhood Cancer!

 

From Facebook

Way to go Ethan. ... See MoreSee Less

Ethan delivered another Read+Think+Thrive (RTT) Box yesterday at CHOC Children's Hospital, this time to a 6 1/2 year old boy named Alexander who was just diagnosed with Leukemia this week. The box contained some of our favorite books for first grade boys, including picture books, a beginning reading book, transitional chapter books, a family chapter book read aloud, and a nonfiction book. It also contained a RTT Toolbox with art supplies and Ethan’s RTT Challenge to respond through art to one of the books in the box. And, Ethan enclosed a personal note advising the new Leukemia warrior to “Keep reading” through treatment. As was the case last month when we delivered a reading box to Carter after he relapsed, Ethan was so proud to be able to deliver Alexander’s book box. Selecting the books, writing the note, carrying the heavy box while he himself is tired due to the effects of steroids this week. He’s glowing as he does it all, knowing so well how much books have helped him get through his own battle. After this delivery, we decided that we’re going to reach out to CHOC to figure out how to get RTT Boxes in the hands of every newly diagnosed oncology patient at CHOC. This will be another way to get books in the hands of hospitalized kids as we await volunteer approval for our bedside reading program. And it will be putting books in kids' hands at a time when they need it most — when they feel the worst, are missing school, and likely have no books with them. Please stay posted as we work with CHOC to systematically get our Read+Think+Thrive Boxes to every kid who is diagnosed with cancer. And for ways that you can help us do that! Thank you Girl Scout Troop #3115 for providing our first supply of reading boxes!! #ReadThinkThrive #HospitalizedKidsNeedBooksToo #ReadAloudEveryDay #RTTBOX #MaxLoveProject #GirlScoutTroop3115

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Thanks to everyone who contacted their elected officials. ... See MoreSee Less

Thanks to the 100's of people and organizations who gave voice to this ground breaking act that will result in more new drugs and therapies. www.prnewswire.com/news-releases/race-for-children-act-becomes-law-300506830.html?tc=eml_cleartime

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Childhood Cancer Survivors: A Practical Guide to Your Future, 3rd ed shared World Cancer Support Month's post. ... See MoreSee Less

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