April Newsletter 2016

April 15, 2016


Survivorship Follow-Up Programs

Is it time for your annual follow-up visit with an expert? Many years ago, two parents of long-term survivors created a list of survivorship programs that provided comprehensive screening and treatment of late effects. This list has grown to more than 70 programs and was expanded a few years ago to include programs that serve adult survivors of childhood cancer. We recently updated the list. Check it out!


A Great Organization

Gabe’s Chemo Duck Program. This unique educational program offers a Chemo Duck to children with cancer. This soft, cuddly companion provides huggable hope and alleviates fear and anxiety. Developed with the help of child life specialists and medical professionals, the Chemo Duck Program helps introduce children and families to their new life and encourages healing through the power of play therapy. For more information, visit


Meet Author Tania Shiminski-Maher

Tania Shiminski-Maher received her BSN and MS in pediatric primary care from Columbia University and holds an academic appointment to the faculty of Columbia University School of Nursing. She is certified as a pediatric nurse practitioner and has held past certification as clinical neuroscience registered nurse and pediatric oncology nurse. For the past 30 years, she has worked as a pediatric nurse practitioner in pediatric neurosurgery and pediatric neuro-oncology and has published extensively in the areas of pediatric brain tumors, hydrocephalus, and multidisciplinary team communication. She has been a member of the Children’s Cancer Group (CCG) and Children’s Oncology Group (COG) for the past 25 years. She is the lead author of Childhood Cancer Guides’ book Childhood Brain & Spinal Cord Tumors: A Guide for Families, Friends, and Caregivers 2nd ed.


Childhood Brain & Spinal Cord Tumors, 2nd ed.

This new parent guide covers brain and spinal cord tumors diagnosed during childhood and adolescence. It contains essential information that families and friends need during this difficult time, including how to:

  • Understand the diagnosis
  • Get excellent treatment
  • Cope with side effects
  • Find emotional support
  • Identify helpful resources

Woven throughout the text are true stories—practical, poignant, moving, funny—from more than 120 children with brain or spinal cord tumors, their siblings, and their parents. The text was reviewed by renowned experts in pediatric oncology, and the foreword was written by Henry Friedman, MD, Deputy Director, Brain Tumor Center at Duke. Check it out!

Moment of Zen

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