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April Newsletter 2017

April 27, 2017


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Treehouse Childhood Cancer Initiative.

This initiative, a program of the UC Santa Cruz Genomics Institute, offers free genomic analysis to any child who has participated in clinical trials and has run out of treatment options for his/her cancer. By using genomic analysis, Treehouse offers options for those children who previously had none. In the past three years, Treehouse has worked with partners at nine medical research centers. In 100% of cases analyzed, additional treatment options have been identified. Please watch this short video or visit the website to learn more about this groundbreaking work.

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Race for Children Act

There are almost 900 drugs in the adult cancer pipeline, but only a handful are in development for children. The RACE for Children Act will change that. Under this act, companies developing cancer drugs will test the drugs in children with cancer.  Pediatric oncologists will be able to study new cancer drugs, with industry funding. Find out more about the act on the Kids v Cancer website as well as a way to send messages to your elected officials (only takes 2 minutes!)

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Scholarships for Survivors of Brain and Spinal Cord Tumors

Four Scott J. Reisser Memorial Scholarships, each a one-time $5,000 award, are granted to deserving applicants each year. To be eligible for consideration, each applicant must be a brain or spinal cord tumor survivor who has been admitted to, or is currently attending, a two- or four-year college or vocational program. The applicant must also reside in the NY, NJ or CT metropolitan area around NY City. The application deadline is May 1. For more information, www.makingheadway.org/scholarships.html.

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Another Scholarship for Survivors of Brain and Spinal Cord Tumors

The Pediatric Brain Tumor Foundation’s college scholarship program eases the financial hardships of a childhood brain tumor diagnosis and helps survivors reach their career goals. This scholarship is for survivors diagnosed at or before age 19 with a malignant or nonmalignant central nervous system brain and/or spinal cord tumor who plan to attend or are already attending an accredited academic institution in the United States. Applications are due for this scholarship on May 1. Click here for more information.

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Disabled in Some Ways but With a Voice

“At age 35, I still live with my parents. I can’t drive. I can’t work because my communication skills are limited, but I can write, and I can be a voice for the kids who have cancer today. And I am.” To read Danielle’s moving story, click here.

A Video of Kids Kicking Cancer

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