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April Newsletter 2017

Treehouse Childhood Cancer Initiative This initiative, a program of the UC Santa Cruz Genomics Institute, offers free genomic analysis to any child who has participated in clinical trials and has run out of treatment options for his/her cancer. By using genomic analysis, Treehouse offers options for those children who previously had none. In the past three years,... Read more »

April 27, 2017

March Newsletter 2017

Survivor Works as Nurse Where She Was Treated. When she was 16, Rachel Barclay was diagnosed with leukemia and treated with chemo, radiation, and a bone marrow transplant at Primary Children’s Hospital in Salt Lake City. A few months ago, after graduating from college with a nursing degree, she returned there to work as a... Read more »

March 30, 2017

February Newsletter 2017

Trips and Treks Issue! Many of us are snowed in this February, so it’s fun to think of travel. This edition of our newsletter focuses on trips and treks for cancer survivors of all ages. Hope you find something that works for you. Bon voyage! River Discovery River Discovery’s unique adventure programs offer youth, teens,... Read more »

February 16, 2017

January Newsletter 2017

Happy New Year! Childhood Cancer Guides wishes each of you a happy, healthy, and joyful 2017. Becca’s Bucket List Add a drop of kindness to Becca’s bucket list. With no more treatments left to try, Becca has only a few months to live. She is busy checking things off her bucket list, one of which... Read more »

January 25, 2017

December Newsletter 2016

Mother–Daughter Survivors in Rose Parade! The float "Waves of Hope" will honor Edie and Emily Gilger, a mother-daughter duo from Lynchburg, Virginia. Emily (mom) and Edie (7-year old) are both survivors of neuroblastoma. The float's design features a little girl playing in the ocean, three dolphins, and a starfish spinning on a sand castle. The... Read more »

December 29, 2016

December Article 2016: Five Ways to Prevent Medical Mistakes When Your Child Is In the Hospital

Medical errors may be the third leading cause of death in the United States. Estimates range from 98,000 deaths a year[i] to 400,000 deaths.[ii] But, we all need to go the hospital sometimes, and 3 million families bring a child to the hospital each year. Your Child in the Hospital: A Practical Guide for Parents... Read more »

December 2, 2016

November Newsletter 2016

Making Cancer Less Painful for Kids.  Pain in children and adolescents is often one of the most commonly experienced and distressing symptoms of cancer and its treatment. Over the next 12 months, the Cancer Knowledge Network will share the very best information about children’s cancer pain – what causes it, common myths, how to assess... Read more »

November 29, 2016

October Newsletter 2016

New Immunotherapy Treatment for Relapsed ALL Ava Christianson was treated from age 4 to age 8 with chemotherapy, a bone marrow transplant, and an experimental therapy, but her ALL kept returning. She went to the National Cancer Institute to try a new immunotherapy treatment, called CAR T-cell therapy. During a 5-minute treatment, she was infused... Read more »

October 31, 2016

September Newsletter 2016

Anne Spurgeon and Nancy Keene on the Radio! Heartfelt thank you to Childhood Cancer Talk Radio for hosting Anne Spurgeon and Nancy Keene on the show in September. Click here to hear the program. Follow-up Guidelines for Survivors In an ideal world, all survivors of childhood cancer would be seen every year at a comprehensive survivorship... Read more »

September 30, 2016

August Newsletter 2016

Our New Book Is On Sale! Childhood Cancer: A Parent’s Guide to Solid Tumors, 3rd ed by Anne Spurgeon and Nancy Keene is now available. It covers liver tumors, kidney tumors, neuroblastoma, retinoblastoma, and sarcomas (soft tissue and bone). With text reviewed by more than 50 national experts and bursting with poignant and practical stories... Read more »

August 17, 2016

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