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December Article 2016: Five Ways to Prevent Medical Mistakes When Your Child Is In the Hospital

Medical errors may be the third leading cause of death in the United States. Estimates range from 98,000 deaths a year[i] to 400,000 deaths.[ii] But, we all need to go the hospital sometimes, and 3 million families bring a child to the hospital each year. Your Child in the Hospital: A Practical Guide for Parents... Read more »

December 2, 2016

November Newsletter 2016

Making Cancer Less Painful for Kids.  Pain in children and adolescents is often one of the most commonly experienced and distressing symptoms of cancer and its treatment. Over the next 12 months, the Cancer Knowledge Network will share the very best information about children’s cancer pain – what causes it, common myths, how to assess... Read more »

November 29, 2016

October Newsletter 2016

New Immunotherapy Treatment for Relapsed ALL Ava Christianson was treated from age 4 to age 8 with chemotherapy, a bone marrow transplant, and an experimental therapy, but her ALL kept returning. She went to the National Cancer Institute to try a new immunotherapy treatment, called CAR T-cell therapy. During a 5-minute treatment, she was infused... Read more »

October 31, 2016

September Newsletter 2016

Anne Spurgeon and Nancy Keene on the Radio! Heartfelt thank you to Childhood Cancer Talk Radio for hosting Anne Spurgeon and Nancy Keene on the show in September. Click here to hear the program. Follow-up Guidelines for Survivors In an ideal world, all survivors of childhood cancer would be seen every year at a comprehensive survivorship... Read more »

September 30, 2016

August Newsletter 2016

Our New Book Is On Sale! Childhood Cancer: A Parent’s Guide to Solid Tumors, 3rd ed by Anne Spurgeon and Nancy Keene is now available. It covers liver tumors, kidney tumors, neuroblastoma, retinoblastoma, and sarcomas (soft tissue and bone). With text reviewed by more than 50 national experts and bursting with poignant and practical stories... Read more »

August 17, 2016

July Newsletter 2016

Our New Book Is Available! Childhood Cancer: A Parent’s Guide to Solid Tumors by Anne Spurgeon and Nancy Keene is now available. It covers liver tumors, kidney tumors, neuroblastoma, retinoblastoma, and sarcomas (soft tissue and bone). With text reviewed by more than 50 national experts and bursting with poignant and practical stories from 150 families,... Read more »

July 21, 2016

June Newsletter 2016

National Cancer Survivors Day – Sunday, June 5! “National Cancer Survivors Day® is an annual, treasured Celebration of Life that is held in hundreds of communities nationwide, on the first Sunday in June. It is a CELEBRATION for those who have survived, an INSPIRATION for those recently diagnosed, a gathering of SUPPORT for families, and... Read more »

June 5, 2016

May Article 2016: Blood Tests for Children with Cancer

Blood test results of children being treated for cancer often fluctuate wildly. The number of white blood cells can go down to zero or be above normal. Levels of red blood cells and/or platelets may go down periodically during treatment, necessitating transfusions. Absolute neutrophil counts (ANC) are closely watched, as they give the oncologist an… Read more »


May 4, 2016

April Newsletter 2016

Survivorship Follow-Up Programs Is it time for your annual follow-up visit with an expert? Many years ago, two parents of long-term survivors created a list of survivorship programs that provided comprehensive screening and treatment of late effects. This list has grown to more than 70 programs and was expanded a few years ago to include programs... Read more »

April 15, 2016

March Newsletter 2016

Nancy Keene Asked to Deliver Keynote Address About Survivorship Nancy Keene will deliver the keynote address at the Seventh International Nursing Conference on Children and Adolescent Cancer Survivorship being held on April 7–8, 2016 at The Children's Hospital of Philadelphia. She will share her dreams for the future with nurses and nurse practitioners who care for... Read more »

March 15, 2016

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