July Newsletter 2016

Our New Book Is Available! Childhood Cancer: A Parent’s Guide to Solid Tumors by Anne Spurgeon and Nancy Keene is now available. It covers liver tumors, kidney tumors, neuroblastoma, retinoblastoma, and sarcomas (soft tissue and bone). With text reviewed by more than 50 national experts and bursting with poignant and practical stories from 150 families,... Read more »

July 21, 2016

June Newsletter 2016

National Cancer Survivors Day – Sunday, June 5! “National Cancer Survivors Day® is an annual, treasured Celebration of Life that is held in hundreds of communities nationwide, on the first Sunday in June. It is a CELEBRATION for those who have survived, an INSPIRATION for those recently diagnosed, a gathering of SUPPORT for families, and... Read more »

June 5, 2016

May Article 2016: Blood Tests for Children with Cancer

Blood test results of children being treated for cancer often fluctuate wildly. The number of white blood cells can go down to zero or be above normal. Levels of red blood cells and/or platelets may go down periodically during treatment, necessitating transfusions. Absolute neutrophil counts (ANC) are closely watched, as they give the oncologist an… Read more »

May 4, 2016

April Newsletter 2016

Survivorship Follow-Up Programs Is it time for your annual follow-up visit with an expert? Many years ago, two parents of long-term survivors created a list of survivorship programs that provided comprehensive screening and treatment of late effects. This list has grown to more than 70 programs and was expanded a few years ago to include programs... Read more »

April 15, 2016

March Newsletter 2016

Nancy Keene Asked to Deliver Keynote Address About Survivorship Nancy Keene will deliver the keynote address at the Seventh International Nursing Conference on Children and Adolescent Cancer Survivorship being held on April 7–8, 2016 at The Children's Hospital of Philadelphia. She will share her dreams for the future with nurses and nurse practitioners who care for... Read more »

March 15, 2016

March Article 2016: Five Ways to Stay Healthy After Treatment for Childhood Cancer

More than 420,000 children, teens, and adults in the United States are survivors of childhood cancer. The surgery, radiation, chemotherapy, and stem cell transplants used to cure children and teens of cancer can affect growing bodies and developing minds. The scary news is that most survivors develop late effects months, years, or decades after treatment…. Read more »

March 1, 2016

February Article 2016: Preparing Children for Hospitalization

“Why do I have to go to the hospital?” “Will they hurt me?” “Are you going to leave me there?” “How long will I stay?” These are some of the questions your child might ask before a trip to the hospital. Hospitals are fascinating, but sometimes frightening, places for children. They are full of beds… Read more »

February 16, 2016

February Newsletter 2016

Tis the Season to Apply for College Scholarships – Many organizations give scholarships to survivors of childhood cancer. For example, the Ulman Fund for Young Adults awards 14 different $2,500 scholarships. Scholarships are offered for siblings as well as survivors.  Due date for applications is March 1. The Children’s Brain Tumor Foundation has a list of available... Read more »

February 3, 2016

January Article 2016: Venous Catheters for Children with Cancer

One of the first decisions parents have to make after their child is diagnosed with cancer is what type of venous catheter to use. Whether your child has leukemia, a brain tumor, neuroblastoma, osteosarcoma, Wilms tumor, or another type of childhood cancer, he or she will probably need intensive treatment. For most childhood cancers, treatment... Read more »

January 28, 2016

January Newsletter 2016

Tip for Parents of a Hospitalized Child – Stay away from that dangling necktie! Recent guidelines suggest that doctors should not wear a swinging tie, long sleeved shirts, rings, watches, or lab coats because those items collect and spread germs. Parents can ask hospital staff members to wash that grimy stethoscope and tuck that tie... Read more »

January 2, 2016

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