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December Newsletter 2016

December 29, 2016


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Mother–Daughter Survivors in Rose Parade!

The float “Waves of Hope” will honor Edie and Emily Gilger, a mother-daughter duo from Lynchburg, Virginia. Emily (mom) and Edie (7-year old) are both survivors of neuroblastoma. The float’s design features a little girl playing in the ocean, three dolphins, and a starfish spinning on a sand castle. The Rose Parade will air January 2, 2017 starting at 8:00 a.m. PST. For more information about the float, click here.

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Wisconsin Pediatric Oncologist’s Rock Sale Goes Viral

This holiday season, Nordstrom sold out of an unusual product––a leather-wrapped rock that cost $85. That news inspired Dr. David Margolis at Children’s Hospital of Wisconsin to start a unique fundraising campaign––Rocks for a Reason. “I figured if people were willing to pay $85 for a rock that didn’t do anything, there must be some people out there who would be willing to pay $85 for a rock that would help bring joy to kids in the hospital,” said Margolis. When the rocks for kids effort went viral, Nordstrom offered to match the first $50,000 in contributions. Dr. Dave rocks!

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Herpes Virus Linked to Childhood Leukemia

Although it has long been suspected that infection might play a role in the development of childhood acute lymphoblastic leukemia (ALL), for the first time researchers have linked ALL to a specific virus. The study showed that children who developed ALL were likely to be positive for a type of herpes virus called cytomegalovirus (CMV) at birth. “If it’s truly that in utero CMV is one of the initiating events in the development of childhood leukemia, then control of the virus has the potential to be a prevention target,” Dr. Francis said. “That’s the real take-home message.” Click here to view the article online.

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SuperSibs

Do you know about the Alex’s Lemonade Stand Foundation SuperSibs program? Brothers and sisters of cancer patients often face fear, anxiety, changes in daily routines, worry, grief, and even jealousy as their family experiences the emotional turmoil of cancer treatment. SuperSibs is dedicated to comforting, encouraging, and empowering siblings during their family’s childhood cancer journey, so these children and teens can face the future with courage and hope. Check it out by clicking here.

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Washington Post Article About Survivors

Brittany Galan was diagnosed with leukemia when she was just 6 weeks old. Her family celebrated her cure, calling her a miracle baby. But later, like most survivors, she began to develop late effects from the treatments that saved her life. In grade school, she had trouble with reading and math and eventually went on ADHD medication. In college, she developed a heart problem. Recently, 24-year-old Galan began taking medication for anxiety and depression. The almost half million survivors of childhood cancer in the United States need life-long care from experts. The article is online here.

Photo by Tamir Kalifa for The Washington Post.

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Thanks to Our Volunteers

Childhood Cancer Guides is a small nonprofit that publishes books for families of kids with cancer and survivors of childhood cancer. For 20 years, we have relied on hundreds of volunteers to create our award-winning guide books. More than 500 parents, kids with cancer, and their sibs have shared their stories to help those following in their footsteps. More than 160 experts––pediatric oncologists, nurse practitioners, educators, social works, child life specialists––review the content of our books to make sure it is up-to-date and accurate. Heartfelt thanks to each and every one of you!

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