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November Newsletter 2017

November 16, 2017


Hope Portal!

A wonderful new resource for families is now live. The Hope Portal lets users customize their search (e.g., by disease, geographic location, need) to easily find reliable childhood cancer-related assistance and information. The portal is a collaboration among the Coalition Against Childhood Cancer, the Association of Pediatric Hematology and Oncology Nurses, the Association of Pediatric Oncology Social Workers, and KBI Biopharma. Check it out.

You Shop. Amazon Gives.

Help our nonprofit while you shop this holiday season. Every time you purchase a gift on Amazon Smile, Amazon will make a donation to Childhood Cancer Guides. The more you purchase, the bigger the donation. We’re thankful for supporters who help us help families. Click here to start shopping.

November is National Family Caregiver’s Month

Caregiving is a 24-hour a day job, so Children’s Cause for Cancer Advocacy provided some helpful tips for parents of kids with cancer. “Parents of children with cancer are all-too-familiar with the stresses of administering their child’s medication, juggling work responsibilities, panicked middle-of-the-night ER visits, losing time with other children and family members during lengthy hospital visits…” To read the tips, visit this link.

New Drug Approved for Childhood CML

Children with Ph+ CML used to have only one treatment option—a stem cell transplant. Now a new drug called dasatinimb (Sprycel®) has dramatically changed that. Pills are only taken once a day, and they usually cause only mild side effects. On this new drug, 96% of kids newly diagnosed entered  emission, and 83% of kids who relapsed also entered remission in the early clinical trials. This is a giant step forward for kids with CML. You can read about it here.

Need Insurance?

Many parents of kids with cancer and survivors of childhood cancer don’t get insurance through their jobs. If you are in that big group, now’s the time to sign up for insurance through an Affordable Care Act exchange. There are 12 state exchanges and a national exchange for people who live in the other states (www.healthcare.gov). The sign up period ends on December 15. Read 10 helpful tips from Consumer Reports here.

Happy Thanksgiving!

Here at Childhood Cancer Guides we are thankful for all of the things described above: accurate information, our wonderful donors, loved ones who help us in times of need, new and effective medications with fewer side effects, and comprehensive insurance. We hope that you have much to be thankful for this holiday season.

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