This comprehensive parent guide covers medulloblastoma, astrocytoma, primitive neuroectodermal tumors (PNET), brainstem gliomas, hypothalamic gliomas, atrypical teratoid/rhabdoid tumor (AT/RT), ependymomas, craniopharyngiomas, germ cell tumors, and choroid plexis tumors. It contains essential information that families and friends need during this difficult time, including how to:
Woven throughout the text are true stories—practical, poignant, moving, funny—from more than 120 children with brain or spinal cord tumors, their siblings, and their parents.
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“I really can’t say enough good things about this book. It is packed with helpful information that is current, accurate, and written at a level appropriate for most families. I highly recommend it.”– Cancer Librarians Section, Medical Library Association
“For parents, there are few childhood diagnoses more frightening than a brain tumor. This is exactly the book to have in that situation. It maintains a nice balance between providing solid clinical information and sharing stories of emotional support. Highly recommended for all public and health-related libraries.” – Library Journal, starred review and chosen as one of the “Best Consumer Health Books of the Year”
“This guide is a highly valuable resource for families of children with brain and spinal cord tumors. It not only provides reliable and practical information on a wide range of topics that are important for families, but shares essential perspectives and life lessons that best come from parents and children who have traveled these paths before.”– Peter Adamson, MD, Chair, Children’s Oncology Group
“This is a terrific book. It is well-written and easy to read; we recommend it to all who take care of children with these tumors — families and providers.”– Mary-Ann Zimmerman, RN, CPNP, Dana Farber Cancer Institute and Liliana Goumnerova, MD, FAANS, Boston Children’s Hospital
“This is a wonderful resource for newly diagnosed families or those who have been managing a brain or spinal cord tumor for some time.”– Wade Iwata, LMSW, OSW-C, Social worker, Children’s Brain Tumor Foundation, Association of Pediatric Oncology Social Workers
“This book provides an educational, supportive, and practical guide for those affected by the diagnosis of a child’s brain or spinal cord tumor. As a physician and a member of a family that has been affected by cancer, I found this book incredibly insightful and valuable.”– Allison King, MD, Washington University Medical Center, St. Louis, Missouri
“A must-read for those working in pediatric neuro-oncology. It is my go-to book to support patients and families dealing with this difficult diagnosis. The book is comprehensive and is given it to all our patients and families.” — Karen Jensen, LCSW, MSW, pediatric oncology social worker, Children’s Hospitals & Clinics of Minnesota