September Newsletter 2016

September 30, 2016


Anne Spurgeon and Nancy Keene on the Radio!

Heartfelt thank you to Childhood Cancer Talk Radio for hosting Anne Spurgeon and Nancy Keene on the show in September. Click here to hear the program.

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Follow-up Guidelines for Survivors

In an ideal world, all survivors of childhood cancer would be seen every year at a comprehensive survivorship clinic. But, because of distance or cost, the majority of survivors don’t get that level of care. So, check out COG’s survivorship guidelines. If you aren’t followed by an expert in survivorship, make sure your primary care doctor knows about and follows the guidelines.


Library Journal Loves Our New Book

Library Journal gave our new book Childhood Cancer: A Parent’s Guide to Solid Tumor Cancers, 3rd ed. a coveted *starred* review. They even printed the cover! They wrote, “In this latest edition of the esteemed childhood cancer guide, parents of sick children will find the best information available … VERDICT: Comprehensive, encouraging, and pragmatic, this essential title belongs in all libraries.” To read the whole review, click here.


Childhood Cancer Awareness Month

This year, Times Square went gold for childhood cancer. Moving forward, much can be done to increase spending on research for more cures and fewer side effects. For example, you can encourage your elected representatives to support the Race for Children Act (H.R. 5858, S. 3239). Click here to read more about it.


Help 1,000 Families Challenge

Childhood Cancer Guides ran a fun challenge during September—Childhood Cancer Awareness Month. We encouraged people to buy a copy of Childhood Cancer: A Parent’s Guide to Solid Tumor Cancers, 3rd ed. to donate to a family that needed one, their child life department, their ped-onc department, or their local public library. We were thrilled that many people accepted the challenge, helping others following in their footsteps. Here’s a picture of Jay, a retinoblastoma survivor, donating a copy of “Childhood Cancer” to his pediatrician.

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